End of Life Journal Archives

Content tagged with Clinical Practice Development

Lessons from an incomplete implementation project introducing the AMBER care bundle

Kirsty Randall, Annamarie Challinor, Bie Nio Ong

The AMBER care bundle was formally adopted in 2015 by the National Health Service (NHS) Improving Quality and provides a systematic approach to managing the care of hospital patients who are facing an uncertain recovery and who are at risk of dying in the next 1–2 months. This paper describes... Read full article

A walk through bereavement theory

Isabel Dosser

This paper examines and discusses specific grief theories that have emerged over a number of years, resulting in an overview of some of the main theories for the reader. It aims to inform nurses and encourage further exploration of the subject, ultimately resulting in an evidence-based approach to bereavement support. Read full article

Dementia special interest group: shared learning across dementia, palliative and end-of-life care domains

Karen Harrison Dening, Marie Cooper

There is a growing impetus to improve care for people with dementia at the end of life and facilitate better access to palliative care. Some settings and services are concerned that they are ill equipped to care for this group of people, in respect to environment and knowledge and skills.... Read full article

Interventions in the acute hospital setting to help children facing bereavement

Lindsay Hall, Jackie Browne, Roz Bexon, Mary Bleakley, Angela Cheadle

An important aspect of end-of-life care in the acute hospital setting is caring for the whole family, including children and young people. Children and young people may be unseen and unheard by hospital staff. However, they are still affected by the forthcoming death of someone close to them. Early and... Read full article

Eating/Feeding Issues in Dementia: Improving the Dining Experience

Louisa Stone

People with dementia can have problems eating/feeding, which puts them at risk of malnutrition. There are various reasons why people with dementia find eating and/or feeding problematic, including difficulty co-ordinating movements in order to get food into their mouths, difficulty maintaining attention on eating, dysphagia, level of cognitive and physical... Read full article

Lymphoedema Management in Palliative and end-of-life care

Catherine Kreckeler

Lymphoedema is a progressive, chronic condition that can have profound adverse effects on the physical and psychosocial wellbeing of sufferers. It tends to be ineffectively managed in palliative care clinical settings and the condition often goes unrecognised and untreated. Multi-layer, compression, decongestive therapy remains one of the cornerstones of lymphoedema... Read full article

Palliative Care And Advanced Dementia: The Croydon Project

Victor Pace, Sharon Scott

Advanced dementia is associated with a high symptom burden. However, people with advanced dementia and their carers are less likely to be cared for by specialist palliative care services than people with other conditions such as cancer. The traditional model of specialist palliative care, with its high level of symptom... Read full article

Pre-discharge Home Visits for Terminally Ill Hospital Patients

Tracy Alexander, Chia Swee Hong

The preferred place of care and death for the majority of terminally ill people is the home environment. However, the majority of people die in hospital. Discharging terminally ill people from hospital to home is considered to be a complex, challenging and risky process. Pre-discharge occupational therapy home visits are... Read full article

Understanding Factors that Influence the Grieving Process

Lisa Sheehy

Grief is a universal response to loss. Despite its universality, variation exists in how it is experienced and expressed. In light of evidence from bereavement research over the last two decades, previous paradigms regarding grief and loss are changing, which has important implications for professionals, including nurses, who work in... Read full article

What is Dementia? Implications for Caring at the end of Life

Julie Watson

Dementia is understood in a number of different ways within different fields of practice, e.g. health and social care. In Western society, predominantly biomedical ideas of dementia influence the experiences of people who have dementia. Limitations of biomedical models of dementia have led to the development of other ways of... Read full article

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